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Update on TJ - 11/25/2000 Hi - I'm TJ. My full name is Taylor Jacob Wilson, and I was born on December 15, 1999. I weighed 9.2 lbs. and was 21 inches long. I guess you could say I'm a pretty special baby. You see, I was born with Apert Syndrome. You'd probably think I was very unlucky, but the truth is, I have so much love and help surrounding me from all my family and friends, that I feel very lucky in spite of my disorder. I have a long and serious journey ahead of me. My parents, Mark and Cynthia Wilson, have spent a tremendous amount of time educating themselves and fighting for the right care for me. I spent a good portion of my first month in and out of hospitals learning to eat and breathe (two very important things, my mom said). I have been gaining weight and sleeping a little more. Apert Syndrome is extremely rare. Recent figures show less than 200 cases in the U.S.. It's classified more commonly as a craniofacial disorder, and for me that means lots of operations with the 1st one now complete and the next one in 3 months Track my progress... Trust Fund InfoThere is a trust fund established for TJ under the name of Taylor Wilson Benefit Trust Account. The trust fund is setup through MidState Bank (Atascadero is the home branch), or a donation towards the trust can be mailed to: For any questions you may have, please e-mail Mark & Cynthia Wilson at mncwil@surfari.net |
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| TJ's Journal designed by Califariel Graphics - updated 12/3/2000 | ||